MSP had developed a gastric ulcer and other gastroenterological problems in 2019 and had a temporary stoma bag fitted. He told his parents and doctors that he ‘utterly loathed’ it and that he would rather die. As his condition developed he wrote an ‘advance directive’ in February 2020, refusing a permanent stoma or any medical treatment preventing him from living independently. His temporary stoma was removed on 14 May and he experienced sepsis. The only way to save his life was to fit a stoma bag immediately. He chose to have the bag inserted; he wanted to live. The doctors made an urgent out-of-hours application to Mr Justice Hayden to determine whether that life-saving treatment was or was not in his best interests. Even though he had changed his mind and his parents and doctors requested life, the judge ordered the withdrawal of life support.