Displaying items by tag: Sudiksha Thirumalesh

A family has been allowed to name their late 19-year-old daughter, Sudiksha Thirumalesh, after being denied the opportunity to seek specialist treatment abroad due to restrictive reporting regulations. Sudiksha, who suffered from a rare genetic mitochondrial disease, was engaged in a legal battle with the NHS for over six months to seek experimental treatment that could potentially have saved her life. Although she was fully conscious and able to communicate, a court order prevented her and her family from raising funds to travel to Canada for a clinical trial. Sudiksha's situation gained significant media attention, especially after her tragic death. The family, who are committed Christians, have expressed their distress at the treatment they received from the hospital trust and the courts. They felt silenced, intimidated, and prevented from accessing potential life-saving treatment for Sudiksha. Now they hope to seek justice for her and raise awareness of how critical care decisions are made in the NHS and the courts. There are calls for a more transparent and open system to prevent similar ordeals for other patients and families.